Originally Posted on | November 12, 2008 Since Bill has been going up the hospital at night, some of the bedtime routine for our oldest son, William has come into my care as of late. William enjoys “just one more song” and not so much because of my singing voice, but because I think he really likes the company and would rather…
A New Diet
Originally Posted on | November 18, 2008 Last week, the doctors gave John an experimental does of steroids, hoping to short-circuit the seizure process going on in his brain. It worked for a while—for about three days, the seizures were much less frequent and intense, but then Saturday came along and seizures returned. Although since then, the seizures don’t seem to…
More Questions
Originally Posted on | November 24, 2008 John’s seizures have worsened—back to where they were before the first dose of steroids. Dr. Reardon, the neurologist, decided John needed to be stabilized and didn’t want to wait until we started the Ketogenic diet, so they gave John a second round of steroids starting Saturday. Can’t do much more of this, though, because too…
Meditation, Prayer, and Fasting
Originally Posted on | November 24, 2008 We finished our conference with the medical staff this morning. After all the questions, discussions, and mystery of the last couple of months, we seem to have reached a place of (relative) clarity. The clarity comes from the fact that we have come down to choosing between two paths that bring John home to…
January Notes from Our Friends
Originally Posted on | January 1, 2009 Friday, January 2, 2009 9:02 AM, CST I’m so thankful you are all home together! Love the family picture. God is good. Praying for seizures to cease! Gayle Clark Austin, TX Sunday, January 4, 2009 4:39 PM, CST What a blessing to rejoice with you today at John’s baptism. Thank you so much for letting…
February Notes from Our Friends
Originally Posted on | February 1, 2009 Sunday, February 1, 2009 12:45 AM, CST Kelly: Please know that you, John and all of your family are in my thoughts and prayers. Many challenges lie ahead. Your faith in God will give you strength and help you to find the good. God Bless. With love, Fln Fln Neve Fort Worth, TX
March Notes from Our Friends
Originally Posted on | March 1, 2009 Sunday, March 1, 2009 7:56 AM, CST Dear Kelly and Bill, May God continue to bless you all and care abundantly for John and William. I keep thinking of how you ministered to the hospital staff at Dell. I thank you for encouraging me with faith in Christ you all are displaying through such a…
April Notes from Our Friends
Originally Posted on | April 30, 2009 Friday, April 10, 2009 10:19 PM, CDT I am still thinking of you guys and praying too. May you have a blessed Easter. He is risen!Love, Lori lori akin Wednesday, April 15, 2009 8:56 AM, CDT Dear precious Peacocks, We love you and love reading about John. Thank you for encouraging us all in Christ…
“What am I Going to do without my Aircraft Carrier?
Originally Posted on | September 15, 2009 “What am I going to do without my aircraft carrier?” William asked me this question multiple times last Saturday, shortly after we watched his beloved aircraft carrier float down the street and into the storm drain on its way to Shoal Creek. Even though it could barely float anymore, William had played with that plastic…