Waiting in the NICU

Originally Posted on | September 17, 2008

William met his little brother last night and was very excited. He is also excited because John somehow snuck a couple of Curious George books past the obstetrician during delivery and gave them to his big brother (thanks, mom!).

William and I spent the night at home, and a friend stayed with Kelly at the hospital. Kelly is doing well, and has already been up to the NICU to see John.

We met with the cardiologist and neurologist yesterday. The cardiologist told us that John has a poorly shaped aortic valve in his heart. It is functioning well enough at the moment. He will almost certainly have to have surgery as a result in the future, but whether that will be in a few days or in many years is unknown at this point. We’ll know more over the next few days. The cardiologist will perform another echocardiogram this morning.

The neurologist said that John encountered some kind of stress that likely reduced the flow of oxygen to his brain. His EEG is a cause of concern. But the cause for hope is that John’s behavior does not match the pattern of the EEG—he is much more responsive and alert than the neurologist expected after seeing the EEG. They will repeat the EEG in a couple of days, with an MRI soon to follow.

At this point, we basically begin to wait to see how John responds over the coming days, weeks, and perhaps months. We will likely get more information from tests that helps us understand the challenges he is facing, but the doctors have said his response is the key indicator. There is still a chance of a strong recovery.

Kelly will likely be up in the hospital through this weekend. If the hospital has the room, they will check her out but let her stay a couple of extra nights to be near John—we are not sure yet when he will be able to come home.

We can’t say enough about the people who are taking care of John at Seton. When he first arrived at the NICU, I was surprised that almost every nurse on staff stopped by to look at him. I suppose you can’t work around babies in need without having a very strong affection for babies in general. The doctors, nurses, and technicians have all displayed their expertise and compassion. We are in good hands.

Of course, ultimately, we are in the good hands of our Lord. We appreciate so much the prayers that you have lifted up to Him on our behalf. Kelly and I know that prayers are answered.

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